Table 2 Variables and Measures

Category Variable Item Description & Response Scale
Latent Profile Indicators: Challenging Behaviors Self-injurious behavior Hitting oneself, head banging, scratching, cutting, biting, skin rubbing, hair pulling, skin picking, nail biting, pinching oneself, food refusal, etc. Never = 1,Sometimes = 2,Often = 3
Aggressive behaviorc toward others Hitting, kicking, biting, pinching, scratching, hair pulling, hitting with objects, etc.
Destructive behavior Hitting, tearing, cutting, throwing, burning, scratching objects, etc.
Disruptive behavior Pestering/clinging, harassing, picking fights, complaining, crying/laughing without cause, yelling, screaming, etc.
Repetitive and atypical behaviors Pacing, rocking, finger flapping, mouthing objects, tic-like movements, echolalia, self-talk, teeth grinding, pica, overeating/undereating, staring, unusual facial expressions, screaming, etc.
Socially inappropriate behavior Speaking loudly, swearing, lying, invading personal space, threatening, making nonsensical statements, spitting, public self-touching or urination, etc.
Withdrawn or inattentive behavior Social withdrawal, unusual fearfulness, lack of interest in activities, sad/worried expression, poor task concentration, hypersomnia, negative self-talk, etc.
Noncompliant behavior Refusal to comply, avoiding household tasks, breaking rules, defiant behavior, school/work refusal, tardiness, refusing to share, stealing, legal violations, etc.
Latent Profile Indicators: Functional Characteristics Communication ability ① Receptive language ability, ② Expressive language ability, ③ Comprehension of nonverbal cues, ④ Use of nonverbal communication Two or more words = 1, Single words = 2, Unintelligible words = 3, Indistinct sounds = 4, Unable = 5 (scale varies by item)
Cognitive ability ① Reading (Korean), ② Writing (Korean), ③ Number concepts, ④ Understanding dates/days, ⑤ Orientation to place, ⑥ Recognition of familiar people, ⑦ Situational understanding Unable = 1, Limited ability = 2, Able = 3
Instrumental activities of daily living (IADL) ① Personal grooming, ② Housecleaning, ③ Meal preparation, ④ Laundry, ⑤ Nearby outings, ⑥ Use of public transportation, ⑦ Shopping, ⑧ Money management, ⑨ Telephone use, ⑩ Medication management Total assistance required = 1, Substantial assistance required = 2, Some assistance required = 3, Independent = 4
Outcome Variables Caregiver life satisfaction Caregiver’s level of satisfaction with their current life Very dissatisfied = 1, Dissatisfied = 2, Neutral = 3, Satisfied = 4, Very satisfied = 5
Caregiver burden Caregiver’s perceived burden of caring for/supervising the individual with DD Very burdened = 1, Somewhat burdened = 2, Neutral = 3, Somewhat unburdened = 4, Not burdened at all = 5
Control Variables Gender Gender of the individual with DD Male = 1, Female = 0
Age Age of the individual with DD 10s = 1, 20s = 2, 30s = 3, 40s = 4, 50s = 5, 60s = 6, 70s = 7, 80s = 8
Disability type Intellectual Disability or Autism Spectrum Disorder Intellectual Disability = 1, ASD = 0
Disability severity Disability grade prior to abolition of the grading system (June 2019) Level 1 = 1, Level 2 = 2, Level 3 = 3
Caregiver gender Gender of the primary caregiver Male = 1, Female = 0
Household income Average monthly household income (KRW) 500,000 = 1, 10,000,000 or more = 11